Events, Life

Events and Activity

The Thyroid Trust, Special Patient Voices Event Saturday 29th August, 11am - 12:30pmJenny is a teacher, community artist, Member Pioneer at The Co-operative, Service User at Edgehill University and creator of CAN (Create Another Narrative) affirmation cards. Having experienced a rare presentation and difficult journey to diagnosis with postpartum thyroiditis and on-going thyroiditis Jenny has… Continue reading Events and Activity

Life

Birth and Beyond – My Battle to be Heard: A story of how labels and assumptions blew our world apart

It took nearly 3 years of being poorly to find medical support for my not so common presentation of thyroiditis and this was because I was labelled and not heard. Postpartum Thyroiditis After giving birth I had what has been described as an ‘extreme presentation’ of Postpartum Thyroiditis – a condition where your thyroid becomes… Continue reading Birth and Beyond – My Battle to be Heard: A story of how labels and assumptions blew our world apart

Life

Part 6 and The End of My Battle with Postpartum Thyroiditis: The simplicity of acknowledgement, diagnosis and support instilled gratitude and rage simultaneously.

It was so simple.  After nearly three years, I was listened to, heard, and finally found support. Thyroiditis can cause in a small case of patients, a combination of hyper and hypothyroidism as described in literature.'  I was returned to the thyroxine (previously prescribed when my thyroid was underactive) and given a support plan. There… Continue reading Part 6 and The End of My Battle with Postpartum Thyroiditis: The simplicity of acknowledgement, diagnosis and support instilled gratitude and rage simultaneously.

Life

DOWNLOAD & DONATE – Create Another Narrative, CAN Affirmation Cards: Mindset is essential for wellness and has been a tool that I have used to get the support I need. Please download, enjoy and help to create another narrative – a narrative where your voice is heard.

Why CAN Affirmation Can Affirmation Cards were created in response to my own health journey. After giving birth I experienced an extreme presentation of Postpartum Thyroiditis and continuing health problems for several years after this. I found it nearly impossible to access the support that I required and my symptoms were constantly dismissed as mental… Continue reading DOWNLOAD & DONATE – Create Another Narrative, CAN Affirmation Cards: Mindset is essential for wellness and has been a tool that I have used to get the support I need. Please download, enjoy and help to create another narrative – a narrative where your voice is heard.

Life

Part 5 of My Ongoing Battle With My Thyroid Health: Life was slipping through my fingers once again and then I spoke with ‘the lady like me’ who presented new opportunities and hope.

The symptoms And so it goes on and on and on and on. The symptoms once again returned, sent me home from dancing, stopped me from sleeping, made me cancel social events, became excuses for courses and eventually got me a sick note from my 1.5 days a week job - something that, at the… Continue reading Part 5 of My Ongoing Battle With My Thyroid Health: Life was slipping through my fingers once again and then I spoke with ‘the lady like me’ who presented new opportunities and hope.

Life

Part 4 of My On-going Battle with Thyroid Health: Feeling better and building relationships, is there hope?

Good health I left my last post, once again writing 'from a position of good health.' After over eight months of experiencing a return of symptoms that ebbed and flowed through me on a daily basis and to different degrees of severity, my body had (for the second time) slowly regained some sense of normality.… Continue reading Part 4 of My On-going Battle with Thyroid Health: Feeling better and building relationships, is there hope?

Life

Part 3 of My On-going Battle with Postpartum Thyroiditis: After a suspected diagnosis of Graves and Thyroid Eye Disease I found myself back to square one, alone, unheared and without any answers as to why I remained so unwell.

I am going to try and just hash this out because quite frankly I’m bored of thyroids, I’m bored of strategising and I’m bored of battling. It’s exhausting. But there’s something in me that needs to get this story down, for me and for that handful of people who read and relate to the isolation… Continue reading Part 3 of My On-going Battle with Postpartum Thyroiditis: After a suspected diagnosis of Graves and Thyroid Eye Disease I found myself back to square one, alone, unheared and without any answers as to why I remained so unwell.

Life

Thyroiditis Symptoms: The symptoms that were constantly dismissed as mental health, in my on-going battle with Postpartum Thyroiditis and why most symptoms lists just don’t reflect the reality of dealing with a thyroid problem.

Thyroid Symptoms Lists I found it hard to obtain a diagnosis for Postpartum Thyroiditis and on-going thyroiditis and in the search to find answers I read far more than I desired. At one point lists of thyroid symptoms became a source of anxiety for me. This is because they are so often limited to a… Continue reading Thyroiditis Symptoms: The symptoms that were constantly dismissed as mental health, in my on-going battle with Postpartum Thyroiditis and why most symptoms lists just don’t reflect the reality of dealing with a thyroid problem.

Life

Part 2 of My On-going Battle with Postpartum Thyroiditis, Suspected Graves and Thyroid Eye Disease: Nearly two years after giving birth and I continued the battle to be heard.

It's Complicated I'm finding it gradually harder to write about my experience with Postpartum Thyroiditis, namely because I am no longer postpartum. It’s been over twenty-four months since I gave birth to my daughter, and my health has still not fully recovered. The weight of the information in my head, my exhaustion from my ever-changing… Continue reading Part 2 of My On-going Battle with Postpartum Thyroiditis, Suspected Graves and Thyroid Eye Disease: Nearly two years after giving birth and I continued the battle to be heard.

Life

85 affirmations for coping with a thyroid problem: When my body and mind were at their weakest, I had to be my strongest and this is what I told myself.

Hypnobirthing and positive affirmations Before I gave birth to my daughter I practiced hypnobirthing and a part of this was to recite positive thoughts and affirmations. I littered the walls of our house with affirmations in preparation for birth, giving little thought to their usefulness beyond. Postpartum Thyroiditis Three months following the birth of my… Continue reading 85 affirmations for coping with a thyroid problem: When my body and mind were at their weakest, I had to be my strongest and this is what I told myself.